You can read my comment on this post, at the bottom, but suffice it to say: that spending a day with Sarah, on my recent trip to NC, was incredibly special and meaningful. We had so much to share, and I am so grateful that Sarah made the time for me. I hope you’ll check out more of Sarah’s posts, on her blog Huntington’s Disease and Me. She writes with candor and beauty, about such a difficult topic.
Tales from the Motherland and The Huntingtons Chronicles are two blogs written by the same woman, Dawn Quyle Landau, who hails from the northern-most region of Washington state. Her posts are frequently featured on the Huffington Post.
My friendship with Dawn was sparked when I read one of those posts, in which she mentioned the lack of viral success of any Huntington’s disease awareness campaign.
I wasn’t on the right meds at the time, and (instead of angry verbal outbursts) I was as likely as not to send a long rambling letter expressing my dissatisfaction about one thing or another. It is not a period in my life that I treasure, but I am glad that I wrote one of those letters to Dawn.
Being a pie thrower, I was quick to fill her in on the HD Pie in the Face Challenge and to ask how she could deny that…
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The Huntington's Chronicles 
Hi my name is Tawana and i just made the decision to be tested for HD. My mother, my aunt, my cousin, my grandfather, and a few of his brothers all have this Disease. I just found out in 2012 that i was at risk. This is really hard for me I’m 34 with minimal family support because the majority are I’ll. I’m raising money on go fund me for my genetic testing please check it out
Tawana, I’m so sorry to hear that you and your family have had to face HD and the many layers that come with it. How did you only find out in 2012 that you were at risk, if your mother has it? Was this something your family hadn’t discussed? It is such a shock, and I really do understand how difficult the decision to test is, having done it when I was 35! Thanks so much for checking out my blog, and for taking the time to share this very personal journey. I wish you all the best as you move forward, and truly hope your results are negative.