Category Archives: Uncategorized

Sometimes the best gift is staying away

Originally posted on Huntington's Disease and Me:
When you want to celebrate achievements of another and you love parties and people, it is gutting to learn that your presence at such events is a source of stress for your…

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Truth Roars Like A Lion

*This is simultaneously posted here and on my other blog, Tales From the Motherland. (Baby steps, friends. Exactly 2 months ago today, I wrote my first new blog post in ages. Then I recoiled. This started as a draft… nine … Continue reading

Posted in Family, Grief/ grieving, Huntington's Disease, Loss, Uncategorized | Tagged , , , , , , | Leave a comment

In Honor of Huntington’s Disease Awareness Month: a new book about love, fear, and living with HD

I don’t post on this blog enough; anyone who follows here, knows that. As I’ve noted in the past, fear keeps me away. If I hide my eyes, maybe it will go away? It, being Huntington’s Disease. Anyone living with Huntington’s … Continue reading

Posted in Blogs, Family, Huntington's Disease, Uncategorized, Writing | Tagged , , , , , | 8 Comments

I Flinch

I’ve done a true disservice to this blog, to this topic, to readers, and to my own internal world, by avoiding writing about the realities of living with HD in our family. I started this blog to shine a light … Continue reading

Posted in Family, Genetic Disorder, Grief/ grieving, Huntington's Disease, Uncategorized, Writing | Tagged , , , , , , , | 26 Comments

The dawn of being understood

Originally posted on Huntington's Disease and Me:
Tales from the Motherland  and The Huntingtons Chronicles  are two blogs written by the same woman, Dawn Quyle Landau, who hails from the northern-most region of Washington state. Her posts are frequently featured on the…

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Phenomenon

Originally posted on Huntington's Disease and Me:
In the film “Phenomenon,” John Travolta’s character was suddenly able to do amazing things with his brain. Turns out it was because he had brain cancer and (spoiler alert) he died. The…

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Un-Edited Thoughts From Christmas Day, 2015

Is it a wonder that I rarely write at this blog? I think about HD every single day, but I don’t want to think too hard. A friend recently sent me a note and told me she’d read Lisa Genova’s … Continue reading

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