Category Archives: Uncategorized

In Honor of Huntington’s Disease Awareness Month: a new book about love, fear, and living with HD

I don’t post on this blog enough; anyone who follows here, knows that. As I’ve noted in the past, fear keeps me away. If I hide my eyes, maybe it will go away? It, being Huntington’s Disease. Anyone living with Huntington’s … Continue reading

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I Flinch

I’ve done a true disservice to this blog, to this topic, to readers, and to my own internal world, by avoiding writing about the realities of living with HD in our family. I started this blog to shine a light … Continue reading

Posted in Family, Genetic Disorder, Grief/ grieving, Huntington's Disease, Uncategorized, Writing | Tagged , , , , , , , | 26 Comments

The dawn of being understood

Originally posted on Huntington's Disease and Me:
Tales from the Motherland  and The Huntingtons Chronicles  are two blogs written by the same woman, Dawn Quyle Landau, who hails from the northern-most region of Washington state. Her posts are frequently featured on the…

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Phenomenon

Originally posted on Huntington's Disease and Me:
In the film “Phenomenon,” John Travolta’s character was suddenly able to do amazing things with his brain. Turns out it was because he had brain cancer and (spoiler alert) he died. The…

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Un-Edited Thoughts From Christmas Day, 2015

Is it a wonder that I rarely write at this blog? I think about HD every single day, but I don’t want to think too hard. A friend recently sent me a note and told me she’d read Lisa Genova’s … Continue reading

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Three Steps Forward…

Originally posted on TALES FROM THE MOTHERLAND:
(nidcd.nih.gov) Words fail me… piles of words, stuck in my head.  Writer’s Block is an over-simplified term for what I’m feeling about words right now. “You haven’t written anything in ages,” my friend…

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The Ice Bucket Challenge: After The Ice Melts

This gallery contains 3 photos.

Originally posted on TALES FROM THE MOTHERLAND:
Like so many people in the past few weeks, I recently did the ice-bucket challenge for ALS. I was challenged by a cousin, and I in turn challenged four people. Honestly, I was…

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