Tag Archives: The Huntington’s Chronicles

In Honor of Huntington’s Disease Awareness Month: a new book about love, fear, and living with HD

I don’t post on this blog enough; anyone who follows here, knows that. As I’ve noted in the past, fear keeps me away. If I hide my eyes, maybe it will go away? It, being Huntington’s Disease. Anyone living with Huntington’s … Continue reading

Posted in Blogs, Family, Huntington's Disease, Uncategorized, Writing | Tagged , , , , , | 8 Comments

I Flinch

I’ve done a true disservice to this blog, to this topic, to readers, and to my own internal world, by avoiding writing about the realities of living with HD in our family. I started this blog to shine a light … Continue reading

Posted in Family, Genetic Disorder, Grief/ grieving, Huntington's Disease, Uncategorized, Writing | Tagged , , , , , , , | 22 Comments

Un-Edited Thoughts From Christmas Day, 2015

Is it a wonder that I rarely write at this blog? I think about HD every single day, but I don’t want to think too hard. A friend recently sent me a note and told me she’d read Lisa Genova’s … Continue reading

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Eggshells

I know this road. I’ve been here before. Some of the twists, the turns, and the road signs are different, but I know where I am. Hell. This is hell, and I know that we’re not even at the worst … Continue reading

Posted in Family, Genetic Disorder, Huntington's Disease, Loss | Tagged , , , , | 31 Comments

Knowing You’re Gonna Crash…

When I started this blog, I thought I’d be posting all the time. Because, Huntington’s is on my mind– All. The. Time. However, it’s been the opposite. I seem to avoid these pages for that very reason. I can hardly … Continue reading

Posted in Family, Grief/ grieving, Huntington's Disease, Huntington's Disease blog, Loss, Self, The Huntington's Chronicles, Writing | Tagged , , , , , , , , , | Leave a comment

Harder Than I Thought…

Writing this blog is harder than I thought. It’s one thing to upload the old posts that I wrote, as my Mom was dealing with Huntington’s and dying. It’s another to look at where that left me… us. My family. … Continue reading

Posted in Family, Grief/ grieving, Huntington's Disease, Huntington's Disease blog, Loss, The Huntington's Chronicles, Writing | Tagged , , , , | 3 Comments

A Bonus, Love Story

Originally posted on TALES FROM THE MOTHERLAND:
I’m writing this for the Weekly Writing Challenge: Characters. Check it out and give it a try. Her scent often announced her presence, long after she’d come and gone. Shalimar and cigarette smoked…

Posted in Family, Genetic Disorder, Huntington's Disease, Huntington's Disease blog, Mothers, The Huntington's Chronicles, Uncategorized, Writing | Tagged , , , , , | Leave a comment