My name is Dawn, and I am HD negative. However, I have lost my grandmother, my aunt and my mother to Huntingtons Disease. My sister is positive, my brother un-tested. This is my take on a genetic nightmare.
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Tag Archives: The Huntington’s Chronicles
I don’t post on this blog enough; anyone who follows here, knows that. As I’ve noted in the past, fear keeps me away. If I hide my eyes, maybe it will go away? It, being Huntington’s Disease. Anyone living with Huntington’s … Continue reading
I’ve done a true disservice to this blog, to this topic, to readers, and to my own internal world, by avoiding writing about the realities of living with HD in our family. I started this blog to shine a light … Continue reading
Is it a wonder that I rarely write at this blog? I think about HD every single day, but I don’t want to think too hard. A friend recently sent me a note and told me she’d read Lisa Genova’s … Continue reading
I know this road. I’ve been here before. Some of the twists, the turns, and the road signs are different, but I know where I am. Hell. This is hell, and I know that we’re not even at the worst … Continue reading
When I started this blog, I thought I’d be posting all the time. Because, Huntington’s is on my mind– All. The. Time. However, it’s been the opposite. I seem to avoid these pages for that very reason. I can hardly … Continue reading
Writing this blog is harder than I thought. It’s one thing to upload the old posts that I wrote, as my Mom was dealing with Huntington’s and dying. It’s another to look at where that left me… us. My family. … Continue reading