Category Archives: Huntington’s Disease

In Honor of Huntington’s Disease Awareness Month: a new book about love, fear, and living with HD

I don’t post on this blog enough; anyone who follows here, knows that. As I’ve noted in the past, fear keeps me away. If I hide my eyes, maybe it will go away? It, being Huntington’s Disease. Anyone living with Huntington’s … Continue reading

Posted in Blogs, Family, Huntington's Disease, Uncategorized, Writing | Tagged , , , , , | 8 Comments

I Flinch

I’ve done a true disservice to this blog, to this topic, to readers, and to my own internal world, by avoiding writing about the realities of living with HD in our family. I started this blog to shine a light … Continue reading

Posted in Family, Genetic Disorder, Grief/ grieving, Huntington's Disease, Uncategorized, Writing | Tagged , , , , , , , | 22 Comments

Eggshells

I know this road. I’ve been here before. Some of the twists, the turns, and the road signs are different, but I know where I am. Hell. This is hell, and I know that we’re not even at the worst … Continue reading

Posted in Family, Genetic Disorder, Huntington's Disease, Loss | Tagged , , , , | 31 Comments

Knowing You’re Gonna Crash…

When I started this blog, I thought I’d be posting all the time. Because, Huntington’s is on my mind– All. The. Time. However, it’s been the opposite. I seem to avoid these pages for that very reason. I can hardly … Continue reading

Posted in Family, Grief/ grieving, Huntington's Disease, Huntington's Disease blog, Loss, Self, The Huntington's Chronicles, Writing | Tagged , , , , , , , , , | Leave a comment

Friday Fictioneers: Remember Me

It’s Friday Fictioneers— my weekly dose of flash fiction, from a photo prompt. Rochelle Wisoff-Fields brings us together, with photo prompts from various sources. The challenge is to write a story with a beginning, middle and end, and only 100 … Continue reading

Posted in Huntington's Disease, Huntington's Disease blog, The Huntington's Chronicles, Writing | Tagged , , , , | 4 Comments

Harder Than I Thought…

Writing this blog is harder than I thought. It’s one thing to upload the old posts that I wrote, as my Mom was dealing with Huntington’s and dying. It’s another to look at where that left me… us. My family. … Continue reading

Posted in Family, Grief/ grieving, Huntington's Disease, Huntington's Disease blog, Loss, The Huntington's Chronicles, Writing | Tagged , , , , | 3 Comments

You’ve Got to Start Somewhere…

How strange to be starting a new blog, starting over. My other blog, Tales From the Motherland, has been up and running since June 2011. It has 500+ subscribers, and I send it out each week via all kinds of … Continue reading

Posted in Family, Huntington's Disease, Huntington's Disease blog, The Huntington's Chronicles, Writing | Tagged , , , , , | 2 Comments