I haven’t written here in a long while… for all the reasons explained in here. It makes it that much harder to really maintain my denial. While I pride myself on a direct, honest approach to life in general: Carpe Diem and all, I live in a perpetual state of avoidance with Huntington’s. It seems enough to watch those I love suffer; it’s been too hard to write about it regularly as well. Here is a post that I wrote for my blog Tales From The Motherland.
Like so many people in the past few weeks, I recently did the ice-bucket challenge for ALS. I was challenged by a cousin, and I in turn challenged four people. Honestly, I was tempted to skip it and just send a check; I’m not big on the social medial challenges. It’s not that I don’t believe in the causes, it’s just that I know I can send a check without jumping in ice water, or posting a provocative status update (something a good friend took me to task for in the breast cancer trend). However, I loved that my cousin and her adorable daughter nominated me, and so I did it.
At the time, I was seriously news deprived and behind on a lot of things, having spent a lot of this summer traveling, visiting people, or having house guests here with us. My two eldest kids have been…
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