This is the first post I wrote that addressed Huntington’s. There have been many more since, but when I wrote this one, I had no way of knowing that my mother, Caroled, would be dead three months later. When it came, it was a bitter sweet blessing. In every way.
Today is my mother’s 68th Birthday. She lives in a nursing home near me and is in the final, agonizing stages of Huntington’s Disease. When I called her, to wish her happy birthday, she was really happy. She “didn’t remember it was (her) birthday, but she was glad to hear (my) voice.” She’s been in the nursing home since she was 64 and has been unable to fully care for herself for nearly 6 years now. That is far too young to be living like this, but then, there is nothing fair about Huntington’s Disease. It’s a heartless, kick you in the head, genetic disease (called by many scientists “The most devastating genetic disease known”), that does not discriminate and is devastating for everyone involved. If you have the gene: you will get the disease, you will get sick and you will die a horrible death. There…
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